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Inicio Revista Científica de la Sociedad Española de Enfermería Neurológica (Englis... Perception of quality of life in caregivers of patients with dementia
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Vol. 46.
Pages 26-31 (July - December 2017)
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Vol. 46.
Pages 26-31 (July - December 2017)
Original article
Perception of quality of life in caregivers of patients with dementia
Percepción de calidad de vida en cuidadores de pacientes con demencia
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Alix Yaneth Perdomo-Romeroa,
Corresponding author
alixyaneth.perdomo@usco.edu.co

Corresponding author.
, Claudia Andrea Ramírez-Perdomob
a Magíster en Enfermería y en Educación, Universidad Surcolombiana, Neiva-Huila, Colombia
b Magíster en Enfermería, Universidad Surcolombiana, Neiva-Huila, Colombia
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Tables (4)
Table 1. Socio-demographic characteristics of the caregivers of patients with dementia (n=50).
Table 2. Perception of overburden for having to care for a family member, n=50.
Table 3. General perception of quality of life and normality for each wellbeing, n=50.
Table 4. Correlations and significance by dimension of the quality of life characteristic.
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Abstract
Introduction

Individuals with dementia suffer from changes at a cognitive, emotional, and behavioural level. These changes can also affect the quality of life of their caregivers in a physical, psychological, social and spiritual dimension.

Objective

Determine the perception of life quality, taking into account the burden of caregivers of patients with dementia.

Method

A descriptive, correlational and cross-sectional study was conducted on an intentional sample of 50 caregivers of patients diagnosed with dementia. The information was collected using three tools: socio-demographic variables, quality of life, and dimension of caregiver's burden.

Results

The sample consisted of 80% women, with an age range of 36–59 years, of whom 54% were married. More than three-quarters (78%) of them had been a caregiver for more than 37 months, and 66% dedicated 24h to the work of caring. The main caregivers experience a low care burden and low effect on their quality of life.

Conclusions

The study shows the presence of women in the role of caregivers, the relationship between the quality life and burden, and how they are influenced by the physical and psychological dimensions. Similarly, a low social well-being negatively influences the quality life.

Keywords:
Caregivers
Dementia
Quality of life
Nursing
Resumen
Introducción

La demencia es una enfermedad que produce en la persona que la presenta cambios a nivel cognitivo, afectivo y comportamental, estas alteraciones pueden afectar la calidad de vida del cuidador en sus dimensiones físicas, psicológicas, sociales y espirituales.

Objetivo

Determinar la percepción de la calidad de vida, teniendo en cuenta la sobrecarga en cuidadores de pacientes con demencia.

Método

Estudio descriptivo, correlacional, transversal, muestra intencional con 50 cuidadores de pacientes diagnosticados con demencia; se recolectó la información mediante 3 instrumentos: caracterización sociodemográfica, calidad de vida y sobrecarga del cuidador.

Resultados

Mujeres en un 80%, con rango de edad de 36 a 59 años, 54% casados, 78% llevaba más de 37 meses como cuidador y 66% dedican 24h a la labor de cuidado; los cuidadores principales experimentan baja sobrecarga y baja afectación en su calidad de vida.

Conclusiones

El estudio muestra la presencia de las mujeres en el rol de cuidador, así como la relación entre la calidad de vida y la sobrecarga e influidos estos directamente por las dimensiones física y psicológica. De igual forma, un bajo bienestar social influye de manera negativa en la calidad de vida.

Palabras clave:
Cuidadores
Demencia
Calidad de vida
Enfermería

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