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Vol. 158. Issue 11.
Pages 519-530 (June 2022)
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Vol. 158. Issue 11.
Pages 519-530 (June 2022)
Original article
Quality of life and exercise tolerance tools in children/adolescents with cystic fibrosis: Systematic review
Herramientas de evaluación de calidad de vida y tolerancia al ejercicio en niños y adolescentes con fibrosis quística: revisión sistemática
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Paula Blanco-Orivea, Tamara del Corralb, Patricia Martín-Casasb,
Corresponding author
pmcasas@enf.ucm.es

Corresponding author.
, Guillermo Ceniza-Bordalloa, Ibai López-de-Uralde-Villanuevab
a Programa de doctorado en Cuidados en Salud, Facultad de Enfermería, Fisioterapia y Podología, Universidad Complutense de Madrid, Madrid, Spain
b Departamento de Radiología, Rehabilitación y Fisioterapia, Facultad de Enfermería, Fisioterapia y Podología, Universidad Complutense de Madrid, Madrid, Spain
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Abstract
Introduction

This systematic review aims to analyze the validity and reliability of available tools to assess health-related quality of life (HRQoL) and exercise tolerance in children and adolescents with cystic fibrosis (CF).

Materials and methods

A review of observational studies studying the validity and reliability of the tools was conducted. The COSMIN (COnsesus-based Standards for the selection of health Measurements Instruments) guide was followed to analyze the quality of these tools.

Results

A total of 18 studies were selected. Of the eight HRQoL tools, five generic and three specific, analyzed in 14 studies, the Cystic Fibrosis Questionnaire-Revised (CFQ-R) presents the best properties. Of the four tools analyzed to assess exercise tolerance, cycle ergometry and the modified shuttle test are the most valid and reliable.

Conclusions

The CFQ-R, cycloergometry and the modified shuttle test have the best properties for the assessment of children with CF, but more studies are needed.

Keywords:
Cystic fibrosis
Children
Quality of life
Exercise tolerance
Pulmonary function
Resumen
Introducción

La presente revisión sistemática analiza la validez y fiabilidad de las herramientas para valorar la calidad de vida relacionada con la salud (CVRS) y la tolerancia al ejercicio en niños y adolescentes con fibrosis quística (FQ).

Materiales y métodos

Se ha realizado una revisión de estudios observacionales que estudien la validez y fiabilidad de las herramientas, analizando su calidad según la guía COnsesus-based Standards for the selection of health Measurements Instruments (COSMIN).

Resultados

Se seleccionaron un total de 18 estudios. De los ocho instrumentos sobre CVRS, cinco genéricos y tres específicos, analizados en 14 estudios, el Cystic Fibrosis Questionnaire-Revised (CFQ-R) presenta las mejores propiedades. De las cuatro herramientas analizadas para evaluar la tolerancia al ejercicio, la cicloergometría y el test lanzadera modificado son las más válidas y fiables.

Conclusiones

El CFQ-R, la cicloergometría y el test lanzadera modificado presentan las mejores propiedades para la evaluación de niños con FQ, pero son necesarios más estudios.

Palabras clave:
Fibrosis quística
Niños
Calidad de vida
Tolerancia al ejercicio
Función pulmonar

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