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Gastroenterología y Hepatología (English Edition) The Argentinian Crohn's Disease and Ulcerative Colitis Registry (RADECCU): Metho...
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The Argentinian Crohn's Disease and Ulcerative Colitis Registry (RADECCU): Methodological aspects and objectives

Registro Argentino de Enfermedad de Crohn y Colitis Ulcerosa (RADECCU): aspectos metodológicos y objetivos
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Domingo Balderramoa,
Corresponding author
, Joaquín Monterob, Juan Lasac, Ramiro Cruz González Sueyrod, Pablo Andrés Oliverae, Alicia Sambuellif, Abel Novillog, Juan Andrés De Paulad
a Gastroenterology Department, Hospital Privado Universitario de Córdoba, Instituto Universitario de Ciencias Biomédicas de Córdoba, Córdoba, Argentina
b Gastroenterology Department, Hospital Provincial del Centenario, Rosario, Argentina
c Gastroenterology Department, Hospital Británico de Buenos Aires, Ciudad Autónoma de Buenos Aires, Argentina
d Gastroenterology Department, Hospital Italiano de Buenos Aires, Ciudad Autónoma de Buenos Aires, Argentina
e Division of Gastroenterology, St. Michel's Hospital, University of Toronto, Toronto, Ontario, Canada
f Gastroenterology Department, Hospital Municipal Bonorino Udaondo, Ciudad Autónoma de Buenos Aires, Argentina
g Gastroenterology Department, Sanatorio 9 de Julio, Tucumán, Argentina
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Abstract
Objective

There is little information available at the national level on inflammatory bowel disease (IBD) in Argentina. The objective was to describe the methodology of the Argentinian Crohn's Disease and Ulcerative Colitis Registry (RADECCU).

Patient and methods

RADECCU was developed in 2023 with the aim of facilitating the collection of relevant information from patients with IBD in Argentina. After the registry's website platform was developed (01/2023), a nationwide promotion campaign was carried out to incorporate centers into RADECCU.

Results

From 02/2023 to 6/2025, 69 centers (41 private, 28 public) were incorporated, including 142 professionals, and 4081 patients (2275 women and 1806 men) were enrolled in the registry.

Conclusion

RADECCU is the first national IBD registry in Argentina. This registry will provide information on the status of IBD in Argentina and contribute to Latin American data with the potential to generate real-world evidence on different aspects of interest.

Keywords:
Inflammatory bowel disease
Ulcerative colitis
Crohn's disease
Registry
Argentina
Epidemiology
Resumen
Objetivo

Existe escasa información a nivel nacional sobre la enfermedad inflamatoria intestinal (EII) en Argentina. El objetivo fue describir la metodología del Registro Argentino de Enfermedad de Crohn y Colitis Ulcerosa (RADECCU).

Pacientes y métodos

RADECCU se desarrolló desde 2023 con el objetivo de facilitar la recolección de información relevante sobre pacientes con EII en Argentina. Posterior a que se desarrolló la plataforma web (01/2023) del registro se realizó una promoción en todo el país para incorporar centros a RADECCU.

Resultados

Desde 02/2023 a 6/2025, se incorporaron 69 centros (41 privados, 28 públicos) incluyendo 142 profesionales y se enrolaron 4081 pacientes (2.275 mujeres y 1.806 hombres) en el registro.

Conclusión

RADECCU es el primer registro nacional de EII en Argentina. Este registro brindará información sobre la situación de la EII en Argentina y contribuirá a los datos latinoamericanos con el potencial de general evidencia de vida real sobre diferentes aspectos de interés.

Palabras clave:
Enfermedad inflamatoria intestinal
Colitis ulcerosa
Enfermedad de Crohn
Registro
Argentina
Epidemiología

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