TY - JOUR T1 - Lupus: “like a cancer but tinier”. Perceptions of systemic lupus erythematosus among adolescents nearing transition to adult care JO - Revista Colombiana de Reumatología (English Edition) T2 - AU - Hernández Zapata,Lady J. AU - Alzate Vanegas,Sandra I. AU - Eraso,Ruth M. AU - Yepes Delgado,Carlos E. SN - 24444405 M3 - 10.1016/j.rcreue.2018.06.001 DO - 10.1016/j.rcreue.2018.06.001 UR - https://www.elsevier.es/en-revista-revista-colombiana-reumatologia-english-edition--474-articulo-lupus-like-cancer-but-tinier--S2444440519300160 AB - IntroductionPatients with pediatric lupus nearing transition to adult care are expected to take responsibility for their care. Nevertheless, many are not prepared for this, and thus have a poorer prognosis. Using the self-regulation model, the perception of a condition determines the emotional responses and guides coping efforts, appraisal, feedback, and assimilation strategies. ObjectiveTo describe how adolescents nearing transition perceive lupus. Materials and methodsEleven semi-structured interviews were conducted using a hermeneutic approach with techniques from grounded theory. Interviews took place between July 2013 and September 2014. The participants were nine adolescents with diagnosed lupus. ResultsA total of 1800 codes were obtained that emerged as the following preliminary categories: “Attempting to explain the origin”, where the cause of the disease is interpreted as immunosuppression, autoimmunity, association with cancer, guilt and influence of emotional factors, along with the diagnosis process. “What is lost”, which includes changes, being treated differently, and having limitations. The last category was “positive aspects” deals with illness as a behavioral moderator, acquiring qualities, learning about bodily functioning and secondary gain. ConclusionAdolescents perceive their condition based on the implications of the changes experienced in their lives as a result of the diagnosis. Lupus affects several aspects of their lives and brings uncertainty and a need to adjust, leading them to look for explanations. More awareness of these perceptions is required because the latter, along with other factors, determine the strategies that adolescents develop to ensure their self-care and adaptation to any situations arising from living with the condition. ER -