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Journal of Healthcare Quality Research
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Inicio Journal of Healthcare Quality Research Analysis of the quality of patient therapeutic education and information in a hi...
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Vol. 33. Num. 6.November - December 2018
Pages 309-372
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Vol. 33. Num. 6.November - December 2018
Pages 309-372
Original Article
DOI: 10.1016/j.jhqr.2018.08.003
Analysis of the quality of patient therapeutic education and information in a high complexity reference hospital
Análisis de la calidad de la educación e información terapéutica del paciente en un hospital de referencia de alta complejidad
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M. Jansàa,b,
Corresponding author
mjansa@clinic.cat

Corresponding author.
, M.J. Bertranc, J. Vilardelld, F. Garciae, J. Escarrabillb,f, Working Group on Information and Therapeutic Education (GTIET) of the Hospital Clínic de Barcelona
a Diabetes Unit, Chronic Care Program, Hospital Clínic, 170 Villarroel Street, 08036 Barcelona, Spain
b Chronic Care Program, Hospital Clínic, 170 Villarroel Street, 08036 Barcelona, Spain
c Preventive Medicine and Epidemiology Department, Hospital Clínic, 170 Villarroel Street, 08036 Barcelona, Spain
d Communication Area, Hospital Clínic, 170 Villarroel Street, 08036 Barcelona, Spain
e Information Technologies Systems, Hospital Clínic, 170 Villarroel Street, 08036 Barcelona, Spain
f REDISSEC, Health Services Research on Chronic Patients Network, Mater Plan for Respiratory Diseases & Home Respiratory Therapies Observatory ((Ministry of Health, Catalonia), Hospital Clínic, 170 Villarroel Street, 08036 Barcelona, Spain
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Figures (1)
Tables (5)
Table 1. Target patient groups. Educational activities, self-management programs and informative materials.
Table 2. Initial patient assessment.
Table 3. Final assessment of patient outcomes.
Table 4. Health care provider proposals.
Table 5. New target patient groups to self-management programs proposed by health care providers.
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Abstract
Background and objectives

The application and monitoring of quality criteria in information and therapeutic patient education can identify areas to improve care. The objectives of this study were: (1) To analyze the characteristics of patient information materials, educational activities, and self-management programs, and (2) to determine health care provider (HCP) proposals on therapeutic patient education.

Materials and methods

Using a cross-sectional study, an online questionnaire was sent to hospital departments in a high complexity reference hospital from September to December 2013 to record: (a) information materials, (b) patient educational activities, and self-management program characteristics, (c) HCP proposals. The materials were analyzed using Health Promoting Hospitals (HPH) recommendations.

Results

(1) An analysis was performed on 258 materials (leaflets [54%]) for chronic patients (86%), acute patients (7%), and the general population (7%). More than half (55%) lacked the authors, and 43% the year issued, and 69% followed HPH recommendations. (2) An evaluation was made of 70 educational activities and 37 self-management programs addressed to patients/relatives with diabetes/obesity, musculoskeletal disorders, COPD/asthma, pelvic-floor disorders, transplantation, bowel-inflammation/liver disease, hypertension, cancer, heart failure, acquired immune deficiency syndrome, chronic renal insufficiency, splenectomy, anticoagulation and older-patient dependence. The structure, process and outcome evaluation varied. (3) HCP proposals included: standardization of materials criteria, web accessibility, list of accredited websites, cross-sectional use, and HCP training in self-management education.

Conclusions

The online questionnaire showed the weaknesses and strengths of patient information and education, and can be used to monitor their quantity and quality. These results help in the definition of a useful model to improve patient information and education policies.

Keywords:
Information literacy
Patient education
Registries
Chronic disease
Abbreviations:
NCDs
HCP
NICE
HPH
Resumen
Antecedentes

La aplicación y el seguimiento de criterios de calidad en la información y educación terapéutica (ET) permite identificar oportunidades de mejora asistencial. Los objetivos fueron: (1) Analizar materiales informativos, actividades educativas y programas educativos estructurados y (2) Determinar las propuestas de los profesionales de la salud (PS) sobre información y ET.

Materiales y métodos

Estudio transversal en hospital de alta complejidad y de referencia. Se envió cuestionario online a los departamentos del hospital (septiembre-diciembre 2013) registrando: (a) Materiales informativos, (b) Actividades educativas y características de los programas educativos estructurados, y (c) Propuestas de los PS. Los materiales se analizaron utilizando recomendaciones de Hospitales Promotores de la Salud (HPS).

Resultados

(1) Se analizaron 258 materiales (folletos [54%]) para pacientes crónicos (86%), pacientes agudos (7%) y población general (7%); el 55% carecía de autores y el 43% de año de edición; el 69% siguió las recomendaciones de los HPS; (2) Se identificaron 70 actividades educativas y 37 programas estructurados dirigidos a pacientes/familiares con diabetes/obesidad, trastornos musculoesqueléticos, EPOC/asma, trastornos del suelo pélvico, trasplante, inflamación intestinal/enfermedad hepática, hipertensión, cáncer, insuficiencia cardíaca, SIDA, insuficiencia renal crónica, esplenectomía, anticoagulación y dependencia en pacientes mayores. Estructura, proceso y evaluación de resultados variaron, y (3) Las propuestas de PS fueron: criterios para unificar materiales, accesibilidad vía web, lista webs acreditadas, utilización transversal y, formación de los PS en ET.

Conclusiones

El cuestionario online mostró fortalezas y debilidades de la información y educación del paciente, y puede utilizarse para monitorizar su cantidad y calidad. Estos resultados permiten definir un modelo para mejorar la información y la educación terapéutica.

Palabras clave:
Alfabetización informacional
Educación del paciente
Sistema de registros
Enfermedad crónica

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