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Allergologia et Immunopathologia
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Inicio Allergologia et Immunopathologia Quality of life in caregivers of children with asthma: Validity and reliability ...
Journal Information
Vol. 44. Num. 2.March - April 2016
Pages 97-188
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Vol. 44. Num. 2.March - April 2016
Pages 97-188
Original Article
DOI: 10.1016/j.aller.2015.04.002
Quality of life in caregivers of children with asthma: Validity and reliability of the IFABI-R questionnaire
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A. Cano-Garcinuñoa,
Corresponding author
acanog@saludcastillayleon.es

Corresponding author.
, D. Forns-Serrallongab, I. Mora-Gandarillasc, A. Bercedo-Sanzd, M.T. Callén-Blecuae, J.A. Castillo-Laitaf, I. Casares-Alonsog, E. Tauler-Toroh, L.M. Alonso-Bernardoi, Á. García-Merinoj, I. Moneo-Hernándezk, O. Cortés-Ricol, I. Carvajal-Urueñai, J.J. Morell-Bernabém, I. Martín-Ibáñezn, C.R. Rodríguez-Fernández-Olivao, M.T. Asensi-Monzóp, C. Fernández-Carazoq, J. Murcia-Garcíar, C. Durán-Iglesiass, J.L. Montón-Álvarezt, B. Domínguez-Aurrecoecheau, M. Praena-Crespov
a CS Villamuriel de Cerrato, Palencia, Spain
b Department of Clinical Psychology and Health, Barcelona Autonomous University, Barcelona, Spain
c CS Infiesto, Asturias, Spain
d CS Buelna, Santander, Spain
e CS Bidebieta, San Sebastián, Spain
f CS Fuentes de Ebro, Zaragoza, Spain
g CS Venta de Baños, Palencia, Spain
h ABS Martorell, Barcelona, Spain
i CS La Ería, Oviedo, Spain
j CS Vallobín-La Florida, Oviedo, Spain
k CS Las Fuentes Norte, Zaragoza, Spain
l CS Canillejas, Madrid, Spain
m CS Zona Centro, Badajoz, Spain
n CAP La Mina, Barcelona, Spain
o CS La Cuesta, Tenerife, Spain
p CS Serrería, Valencia, Spain
q CS El Valle, Jaén, Spain
r CS San Felipe, Jaén, Spain
s CS Arroyo de la Luz, Cáceres, Spain
t CS Mar Báltico, Madrid, Spain
u CS Otero, Oviedo, Spain
v CS La Candelaria, Sevilla, Spain
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Figures (1)
Tables (4)
Table 1. Characteristics of the sample.
Table 2. IFABI-R discriminative capacity: cross-sectional construct validity.
Table 3. IFABI-R evaluative capacity: longitudinal construct validity.
Table 4. IFABI-R evaluative capacity: sensitivity to change.
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Abstract
Background

Parents’/caregivers’ quality of life is an important aspect to consider when handling paediatric asthma, but there is a paucity of valid and reliable instruments to measure it. The Family Impact of Childhood Bronchial Asthma (IFABI-R) is a recently developed questionnaire to facilitate the assessment of asthma-related parents’/caregivers’ quality of life. This study researches the psychometric properties of IFABI-R.

Methods

Parents/main caregivers of 462 children between 4 and 14 years of age with active asthma were included in the sample. IFABI-R was administered on two different occasions and a number of other variables related to the parents’/caregivers’ quality of life were measured: child's asthma control, family functioning, and parents’/caregivers’ perception of asthma symptoms in the child. IFABI-R evaluative and discriminative properties were analysed, and the minimal important change in the IFABI-R score was identified.

Results

IFABI-R showed high internal consistency (Cronbach's alpha=0.941), cross-sectional construct validity (correlation with the degree of child's asthma control, family functioning and parent/caregiver perception of the child's asthma symptoms), longitudinal construct validity (correlation of changes in the IFABI-R with changes in asthma control and changes in the perception of symptoms), sensitivity to change and test–retest reliability. An absolute change of 0.3 units in IFABI-R related to a minimal significant change in the parents’/caregivers’ quality of life.

Conclusions

IFABI-R is a reliable and valid instrument to study the quality of life of parents/caregivers of children with asthma.

Keywords:
Asthma
Quality of life
Caregivers
Family impact

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